Bad news, looks as though my cancer may have spread to the other side of my neck. Biopsy didnt work out so they are going in next monday and opening up my neck to remove some lymph nodes.
there are a couple important nerves in that side they must watch out for so keep me in your thoughts over the next week or so. I was also told if it does show up again on my left side (the original side) that I will possibly need to have Radical Neck Disection including the removal of my jugular vein (apperantly you can live without it).

So keep my in your thoughts (and prayers if Tony Danza reads this) (all my fellow pests should get that one) and if you have the means, toss a five or a ten my way to help with the new scripts I am sure I will need along with the extra co-pays for all these dr appts in a row lately. The company I worked for where I have my Cobra insurance through just had open enrolment for their employees so I am sure  my cobra will be going up this month too (I just don't know by how much yet). I will also have surgery soon on my tailbone / lower back to alieviate this unbearable pain I have been complaining about for a year + now. I will post again when I get out of the hospital this round.
LATERZ PEEPZ


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Anybody had this procedure called  radiofrequency ablation ? My dad had it, I believe on his knees but I am thinking about having it for my lower back and tailbone because I have pain that is absolutely un-friggin-bearable. If anybody else has had this done, let me know how it worked out for you at [email protected] 




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Now after a series of extra Dr visits this month and a few more to go yet, I am in need of money to fill the extra prescriptions that I have gotten this last week and later today when I see my family DR. Main problem is they just change meds up all willy-nilly like you can afford to throw out the ones you are not on anymore and wright up something new that has to get filled. Unfortunately, the perverbial check runs out far faster than the month. So, any of my fellow pests on twitter that can afford a $5 or $10 donation, it would be very much appriciated as those small donations = copay on a prescription. I thank you all in advance.  :-)






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Had my Catscan assisted biopsy last week of my lymph node on the right side of my neck. 5 samples were taken, none had any testable material so no results and no idea what to do from here about the possible cancer relapse. 

Now as for the unbearable tailbone pain I have been complaining about for a year and a half, finally after like my 3rd go round with X-rays, a significant abnormality has been found and off to open MRI Later today. The pain is out of control, the only relief i get is when I am asleep and that only happens when I go into basically a drug induced coma. 2 morphine pills a day and 4 Percosets still do not ease the pain when I sit or stand up. It is even starting to hurt while swimming at the Y. but I did find 1 spot in the hot tub there where my tailbone doesnt touch and i get some serious back relief.

I worry a lot that if I need surgery on my tailbone and spine that I could possibly have some paralysis which would really suck. I hate being this way but I always think the worst but I guess it prepares me better.



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I finally got some free counseling through the county and the free clinic I was going to before I got my Cobra. Saw the Psyciotrist twice and got some meds changed for the better and saw a counseler twice now and saw some light at the end of this ever squeezing shut tunnel. So I fill out some paperwork today and they wanted me to sign here, initial there... one of which says I have no insurance of my own or through my spouse. I said, I have cobra, I thought this was Free (as was stated in the letter they sent me asking me to take advantage of this FREE benefit through the county) Now Im told I can no longer go to the free clinic because they cant see anyone with insurance and i cant go to counseling because even though they take insurance, I would still have to pay a copay and cannot afford another $50.00 a month. Sooooo, there goes therapy. Couldnt get help when i didnt have insurance and cant get help now that I have it even though my cobra runs out in 2 months and then I dont know what I will do. BC/BS of Ohio has told me the same plan I am on will cost me $1,200.00 a month because of my "Pre-Existing Condition" I have BC/BS now, how can they do that?  Answer - They just can. I even brought up Obama Care and they said nothing will be done about pre-existing conditions till next year (and that still may change).

I go in for my biopsy in the morning and this is all i need on top of thinking about what my results may be. I will probably have to wait till next week for results. I have no idea what I am going to do at this point. sometimes I swear being sick is the easiest part. as the title says - THE SYSTEM SUX 
I am so tired of fighting for everything and watching "some people" abuse the system and get away with it every single day! If I was an illeagal, I would be getting free healthcare. If I was a bum and didnt want to even try to work, I would get a check every month as well as foodstamps. They can smoke and drink and trade stamps for drug money and the System still helps them, but me??? I GET NOTHING but the small amount of SS that I WORKED for and PAID into for YEARS. Nothing more, not even help from Medicare for another year (if I get to stay on SS that long). Oh well, I certainly hope nobody else has to go through this the way I did/am. I have no idea what the Hell I am going to do at this point. I use almost a third of my check  JUST FOR insurance and medication refills. pay a couple bills around the house and still cant afford all my copays so I end up cancelling appointments just so I dont get another bill. THE SYSTEM SUX!!!








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I finally figured out how to get my stupid phone to get the Brawdcast and was able to call in and talk to / update the people who saved my life. Early on in my battle with cancer when I was fired from my job, turned down by the welfare system, and not yet elegible for Social Security, These are the Twitter / Podcast Goddesses who spread the word about my plight and took me from 50 twitter followers to over 300 and they kept my website popping up on Twitter and talked about my story enough that my EXTREMELY EXPENSIVE Cobra Insurance was paid for by twitter people in the pest network. I would have been lost without them and there help. My faith in humanity was totally restored because of all the total strangers to me (twitter friends) came together and carried me through my roughest time in my life both financially and spiritually. Even people who couldnt donate at least tweeted me with positive thought to help me through another day (and often times I didnt want to go on another day but someone was always with me in Twitter Spirit). I am sooooo greatfull to the Brawdcast Crew for passing my story along when otherwise it would have just fallen on the deaf ears of a burocratic society. I cant thank them enough and it was sooooo good to hear them tonight. (i have been having computer problems and havnt been able to listen for a while) be sure to follow them on twitter @brawdcast --- Love You Guys (and especially You Gals)


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